Brooke's Story
 
Brooke went into the hospital for a level 4 sleep study to make sure she was fit for her surgery on the 9th. Well that was no good! Surpising to the doctorsm, they werent expecting her test to be so bad as it was,  her test shows that she has obstructed breathing with many desaturations. 247 desaturations per night to be exact. So no surgery for Brooke. The doctors are concerned that when they close her cleft they will obstruct her breathing further and she will need to be admitted to the Intensive Care Unit following the operation. Becasue there is only one pediatric Intensive Care Unit in the entire country her surgery will most likely need to be performed in the Starship Childrens hospital in Auckland at a later date. Right now we are awaiting Drs meetings and tests. She may need to have an operation to bring her jaw foward before the cleft can be closed, and also they are thinking that a nasal pharangeal tube will help her obstructive breathing. So again we wait with no definite plan :S. Oh Brookie, you are so complex arent you!....and so we wait.
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Today is the 4th of December and Brooke has her cleft surgery booked for the 9th. Hopefully she can stay well between now and then and we can start moving foward with feeding and speech. She will also be having grommets inserted so hopefully that will improve the hearing in her right ear. Time will tell.........